A Collingwood family's 34 km Trail of Hope to raise awareness for a rare disease
A Thornbury family is pushing their five-year-old daughter Brynn in a wheelchair 34 kilometres along the Georgian Trail to raise awareness for a rare disease.
It will be an early morning for the Ladly family Thursday. The family is starting at 6 a.m. and will push Brynn, who uses a wheelchair, from Collingwood to Meaford.
The family is raising money and awareness for CDKL5.
CDKL5 deficiency disorder is a rare developmental disorder that causes seizures early on in life and severely impairs development.
The fundraising campaign ends July 1, and so far, the family has raised more than $25,000.
The family is planning on updating the Trail of Hope live on Facebook and Instagram.
If you would like to find out more about the campaign, CDKL5 or would like to cheer the family on the walk, you can find out more here.
Thursday is also worldwide CDKL5 Awareness Day, and national landmarks like the CN Tower and Niagara Falls will be lit lime green in support.
CTVNews.ca Top Stories
Several flight attendants from Pakistan have gone missing after landing in Canada
Multiple flight attendants from Pakistan International Airlines have abandoned their jobs and are believed to have sought asylum in Canada in the past year and a half, a spokesperson for the government-owned airline says.
BREAKING Ottawa public school board, 3 Toronto-area school boards launch lawsuit against social media giants
The Ottawa-Carleton District School Board and three school boards in the Toronto-area have launched legal action against social media giants, accusing them of "disrupting students' fundamental right to education."
Doctors visiting a Gaza hospital are stunned by the war's toll on Palestinian children
An international team of doctors visiting a hospital in central Gaza was prepared for the worst. But the gruesome impact Israel’s war against Hamas is having on Palestinian children still left them stunned.
Crypt near Marilyn Monroe and Hugh Hefner could fetch US$400,000 at auction
A one-space mausoleum crypt in the vicinity of Marilyn Monroe and Hugh Hefner will go on auction Saturday, when it is expected to reach between US$200,000 and $400,000.
Tipping is off the table at this Toronto restaurant
A Toronto restaurant introduced a surprising new rule that reduced the cost of a meal and raised the salaries of staff.
A fight to protect the dignity of Michelangelo's David raises questions about freedom of expression
Michelangelo's David has been a towering figure in Italian culture since its completion in 1504. But in the current era of the quick buck, curators worry the marble statue's religious and political significance is being diminished.
A Nigerian woman reviewed some tomato puree online. Now she faces jail
A Nigerian woman who wrote an online review of a can of tomato puree is facing imprisonment after its manufacturer accused her of making a “malicious allegation” that damaged its business.
Premiers not being truthful about carbon tax, Trudeau says while sparks fly in Ottawa
Prime Minister Justin Trudeau says Conservative premiers across the country are 'not telling the truth' when it comes to the carbon tax. Trudeau's comments came as fresh sparks were flying in Ottawa at a recalled House of Commons committee.
Far North police 'dispatch' polar bear stalking schoolyard
Police and local hunters in an Ontario Far North First Nation community have “dispatched” a polar that was showing abnormal behaviour and treating the area as a hunting ground.